Five years ago today, niece underwent brain surgery for Chiari Malformation. Her brain was slowly slipping backward or lower in her skull putting pressure at the base of the skull and neck. She had severe headaches that were debilitating.
Her doctors were amazing, and as soon as we mentioned her symptoms at a well check-up, they immediately started some tests and knew the answer in days. Surgery was within months.
What amazed me was that within 2-3 days of brain surgery, she was up and about, jumping from couch to couch, etc.
Since her diagnosis, I have learned that there are many people who suffer from CM, but they struggle to be diagnosed b/c doctors know so little about it. There can be various levels of pain and severity of CM, and symptoms can resemble many other disorders/diseases.
While she had surgery, this is not something you "get over." She will live with it forever. Yearly check-ups will keep an eye on how things are going. She may never need surgery again. She might in a few years. We just don't know.
She is an amazing little girl, and I love her to pieces!
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